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"There are so many needy and
worthwhile causes, I wish I could help them all. I had such a happy
and precious childhood that I have always tried to focus on
children's charities, especially the The Variety Club of Great
Britain and Childline
www.childline.org.uk. The former is still a massive Worldwide
fundraiser for needy children and their families and the latter is
literally the 'Fourth Emergency Service', providing advice and
support for our children in times of crisis and confusion. Both
these organisations provide a lifeline for so many, yet still strive
to raise the funds they so richly deserve. It's hardly surprising,
therefore, that the smaller, lesser known charities need help and
exposure too. So I would like to tell you about a foundation that
was set up by the families of children with CdLS."
Cornelia de Lange Syndrome |
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affects just one child in every
40,000, and is caused by a random problem with a single gene. As it
is so rare, diagnosis can take a very long time even years and even
when it is diagnosed it is hard for families to meet other people
with the same condition. CdLS people have both physical and mental
disabilities, all have learning difficulties to some degree. Some of
the children are born with missing limbs, a lot are unable to digest
food without being violently sick. Communication is a major problem
for CdLS people - many have problems speaking and use sign language
to communicate, whilst those who can speak are shy and have
difficulties in being understood.
But one thing many of the children
have in common is a love of music. "Parents have told me that their
children relax and really enjoy music. Music therapists have had a |
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lot of success with CdLS people," I am
proud to say that the CdLS Foundation have asked me to be an
Ambassador for them, and I strive whenever I am in the position to
do so to tell people about the organization. If you would like to
know more about the organization please click on this link below.
Many thanks.

www.cdls.org.uk
CdLS can also receive donations
through the Charities Aid Foundation and through:-
www.justgiving.com/cdls |
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